Advanced Kidney Disease Patient Portal: Implementation and Evaluation with Haemodialysis Patients - Human-Computer Interaction – INTERACT 2021
Conference Papers Year : 2021

Advanced Kidney Disease Patient Portal: Implementation and Evaluation with Haemodialysis Patients

Ramsay Meiklem
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Karen Stevenson
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Matt-Mouley Bouamrane
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Mark Dunlop
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Peter Thomson
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Abstract

Patients on haemodialysis face complex care pathways, a high treatment burden and lower quality-of-life. Working with multidisciplinary domain experts, we have conducted several iterative development cycles to design, develop and evaluate a portal for patients on haemodialysis that can help them better understand and navigate their care pathways. A key functionality of the portal is to improve data and information sharing with clinicians, including on key aspects of quality-of-life through Patients Reported Outcome Measures. A case study was conducted with multidisciplinary experts and patients in the NHS Greater Glasgow and Clyde health board (Scotland), using interviews combined with the System Usability Scale (n = 26). Patients’ feedback and system use observations were used to further refine the system design requirements and functionalities. Key lessons include: a wide preference for tablet-based input vs paper, identification of case-specific accessibility issues and situational impairment, benefits of self-completed digital data collection in overcoming such issues and promoting patient independence and privacy, with considerations for maintaining perceived value and engagement with such systems and when to offer alternatives.
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hal-04196839 , version 1 (05-09-2023)

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Ramsay Meiklem, Karen Stevenson, Sabine Richarz, David B. Kingsmore, Matt-Mouley Bouamrane, et al.. Advanced Kidney Disease Patient Portal: Implementation and Evaluation with Haemodialysis Patients. 18th IFIP Conference on Human-Computer Interaction (INTERACT), Aug 2021, Bari, Italy. pp.175-196, ⟨10.1007/978-3-030-85616-8_12⟩. ⟨hal-04196839⟩
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